WP5 – Societal and Policy change


1. To conduct effective external communication and dissemination of Bootstrap.

2. To develop a toolkit of recommendations based on a shared understanding of digital human rights standards for use by private providers and other stakeholders to reduce societal risks of PUI.

3. To reach out to policy makers to raise their awareness of the health economic cost and burden of PUI and recommend evidence-based preventative strategies.


WP5 is aimed at disseminating and communicating the findings and results found by WP1-WP3 (recruitment and retention, assessment, and intervention), as well as the feedback provided by WP4 (citizen science). WP5 will also assess the health economic costs and burden of PUI (WP2, WP3) and build a set of recommendations as a policy toolkit which will be developed from three approaches: health policy mapping of current PUI regulations for each EU Member

State (WP5), recommendations from citizen involvement (WP4), and protection of fundamental rights (WP5). The results and recommendations will be conveyed to policy-makers through specific actions and roundtables.

Task 5.1 Communication, dissemination, and exploitation (M1-60)

Lead partner and participants LSMU, ICS-HUB, all partners

The aim of the task is, to increase public awareness of the burden, costs, and underlying mechanisms of PUI, as well as to promote healthy usage of the internet, including strengthening fundamental rights, and, on the other hand, to improve visibility of the Bootstrap project for a wide range of stakeholders. The main objectives are:

• To build a recognition of the project, creating an emotional impression on viewers.

• To raise awareness of Bootstrap project aims, results and PUI by engaging online community and reducing stigma.

• To manage how the project and PUI topic are perceived in media.

• To assure coordinated communication at a national level to increase participation.

• To promote the project outcomes after the end of the project.

A detailed communication plan can be found in section 2.3.3 and Table 6.

Task 5.2 Fundamental rights standards & recommendations (M1-60)

Lead partner and participants TLU, PORTO, UoH, ICS- HUB

The objective is to develop a toolkit from the perspective and field of protection of fundamental rights.

• Practice and normative framework assessment. We will identify and critically assess existing practices and community standards of private online service providers, and national and European normative frameworks for safeguarding fundamental rights regarding interventions into PUI. Existing policy documents and the practice of highest national courts and European regional courts (the Court of Justice of the EU and the European Court of Human Rights) will also be addressed.

• Standards articulation and verification. We will (re)formulate public and private community standards which are relevant for safeguarding fundamental rights in the context of interventions into PUI. The proposed standards will be developed based on co-creation by involving public and private stakeholders and IT specialists in the process of articulation and thereafter testing the capabilities of service providers to implement the standards in practice. Theoretical verification will be undertaken by involving scholars and practitioners from the Global Digital Human Rights Network

(COST Action 19143). An international seminar will be organized to present the standards.

• Tool-kit development. We will provide a practical instrument for private online service providers and other relevant stakeholders (the public, government agencies) enabling combination of the suggested public and private standards with technical capabilities. The goal is to provide maximum protection of fundamental rights of vulnerable groups while implementing intervention techniques for PUI. Regular input from the project team developing the intervention techniques and analysing the results will be secured.

Task 5.3 Health economic assessment and Policy toolkit (M1-M60)

Lead partner and participants CAM, UULM, UDE, ICS-HUB

One objective is to assess the health economic costs and burden of PUI. A second objective is to build a detailed map of current PUI regulations for each EU Member State which will be used to develop a policy toolkit from the perspective and field of health regulations.

• Health economic assessment of costs and burden of PUI. This will be performed with data from WP2 and WP3. A detailed description is on WP2.

• Mapping of current PUI regulations. This will be carried out through a policy network analysis method called ‘Rapid Policy Network Mapping’ (RPNM) to map and analyse the network of relations between policy actors and between policy instruments in the context of implementation of PUI policy in the EU. This mapping will be used to build a

policy toolkit.

• Policy Toolkit. This toolkit will provide a rapid overview of problems and policies related to PUI in the EU, integrate recommendations at the local and European level for a new legal framework, describe the profile of people presenting with PUI, and assist with the production of policy aimed at preventing PUI.

• Policy Roundtable. Jointly with the other WP5 tasks a Policy Roundtable will be held in Brussels at the Maastricht University Campus with the objective of discussing the policy recommendations and intervention findings with stakeholders, EU policy-makers, practitioners and decision-makers.

• A final and comprehensive toolkit combining the health, fundamental rights and citizens perspectives will be developed. This final toolkit will be carried out with the participation of all WP5 members and an advisory committee made up of health policies and human rights experts and using a systematic approach such as GRADE (https:// bestpractice.bmj.com/info/toolkit/learn-ebm/what-is-grade/).

Task 5.4 Policy influence (M1-M60) Lead partner and participants UoH, all partners

The goal is to raise awareness of PUI among policy- and decision-makers and propose PUI regulations.

• Videoclips. A series of short videos to communicate scientific findings to a larger audience via social media and other platforms. A constant feedback approach will be used to ensure the development of inclusive language, which will be informative, non-judgmental and culturally appropriate.

• Policy round tables will discuss key policy issues on PUI, whilst evaluating the efficacy of current regulatory approaches across the EU. Each policy round table (5) will be dedicated to a specific topic selected in consultation with young people. The debate will also be informed by the evidence found from mapping existing regulatory frameworks.

Representatives from all the major project stakeholders will be invited to join the discussion panel, to include academics, policy makers, industry, media, young people and professionals working with them. The event will be streamed online to reach a wide audience. Recorded material will be made available on the project website.

• Outcomes will be highlighted in a policy recommendation document, which will be made publicly available and shared with policy making authorities. It will also inform the activities of a dedicated All Party Parliamentary Group, currently under establishment in the UK. Our aim is to facilitate such initiatives also in other countries.

• Final Policy Round table – to be held jointly with the other WP5 tasks in Brussels at the Maastricht University Campus, with the objective of discussing the policy recommendations and intervention findings with stakeholders, EU policymakers, practitioners and decision-makers.